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Sick Girl, by Amy Silverstein
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The publication of Sick Girl garnered tremendous attention, generated impressive sales, and ignited controversy. Both inspiring and provocative, reactions to the book ranged from inflammatory posts on a US News & World Report blog to hundreds of letters to a full-page review in People. Amy's force, her candor, and her refusal to be the thankful patient from whom we expect undiluted gratitude for the medical treatments that have extended her life have put her at the center of a debate on patient rights and the omnipotent power of doctors.
At 24 Amy was a typical type-A law student: smart, driven, and highly competitive. With a full course load and a budding romance, it seemed nothing could slow her down…until her heart began to fail. Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery, which is made all the more dramatic by the romantic bedside courtship with her future husband and her uncompromising desire to become a mother.
In her remarkable book she presents a patient's perspective with shocking honesty that allows the reader to live her nightmare from the inside―an unforgettable experience that is both disturbing and utterly compelling.
- Sales Rank: #7335092 in Books
- Published on: 2016-01-12
- Formats: Audiobook, MP3 Audio, Unabridged
- Original language: English
- Number of items: 1
- Dimensions: 6.75" h x .50" w x 5.25" l,
- Running time: 10 Hours
- Binding: MP3 CD
From Publishers Weekly
Silverstein's memoir offers a rare glimpse at life as an organ-transplant recipient. She was a young law student when the first signs of a deadly virus in her heart appeared. When her doctor said she merely needed to keep her stress in check and add salt to her diet, she happily complied. At 25, after several months of terrifying symptoms and misdiagnoses, she received a heart transplant. Like all organ recipients, to prevent her body from rejecting her new heart, she depends on high doses of immunosuppressants—bitter poison that leaves her nauseous, trembling, aching, and highly vulnerable to infection—for the rest of her life, which was only expected to last another 10 years. To better her chances, she heeded her doctors' advice, sacrificing everything from coffee to alcohol to pregnancy. Still, it seemed that the best she could hope for was the illusion of a normal life, so she kept her body's punishing blows from her friends, her adopted son and at times even from her loving husband, her ever-confident coach through years of devastating illness. [T]o make myself 'normal' again would be the most extraordinary feat that I would never quite accomplish she writes. Now, more than 17 years after her transplant, Silverstein reflects on the often misunderstood journey through the torments of being saved in a stirring story of survival and unyielding love. (Oct.)
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.
Review
"Truly compelling, Sick Girl sucked me in from the get-go. Amy Silverstein's story is amazing and inspiring."
"Spectacular ... Heart transplant patients live along the jagged edges of the abyss that most mortals fear. By bravely peeking over the edge, Amy Silverstein shares with us the brutal reality of being a 'survivor.'"
"Silverstein is an inspired storyteller. Her engaging language and sharp insight make Sick Girl both compelling and moving. Few of us undergo a heart transplant at twenty-four, but we can recognize our own stories in this incisive, unflinching look at life, love, and extraordinary courage."
"Amy Silverstein is not an easy patient, with good reason. She has lived nineteen long years with a transplanted heart, much longer than any doctor could have predicted. And she has, arguably, done more with a transplanted heart than anyone else, including the publication of this remarkable book. It documents her fears, frustrations, anger, and perseverance. She recognizes that the world expects a simpering bundle of gratitude. In her compelling memoir, Sick Girl, Amy delivers a searing insight into the battle to stay alive. And yet, there is also love and humor, and a radiant courage."
From the Back Cover
"An amazing story . . . Will inspire and choke you up with tears and laughter. Highly recommended."--Larry King
"[A] mesmeric human drama of living life as a heart transplant recipient . . . A superb writer with a wry, biting sense of humor . . . Silverstein is a natural raconteur with a story so compelling readers won't want to put this book down."--Maura Sostack, Library Journal (starred review)
"Read this and promise us you'll never whine about having a cold again."--Colleen Oakley, Marie Claire
"[A] tour de force memoir."--Good Housekeeping
"A grueling, ultimately uplifting story of endurance."--Kristin Kloberdanz, Chicago Tribune
"[Sick Girl] is frank and honest and spares no one."--Ian Munro, Sydney Morning Herald
"Sets the record straight about a so-called medical miracle."--Kirkus Reviews
Most helpful customer reviews
51 of 56 people found the following review helpful.
An Interesting Story with an Unfortunate Perspective
By Tiffany Christensen
Amy's illness journey was an interesting one. By all practical/statistical accounts, her life is a profound success story. As a double lung transplant recipient, I can only dream and hope to live as long as Amy has since her heart transplant.
Sadly, the book begins with Amy contemplating stopping her transplant meds as a way of ending "the torture of survival" and leaving behind her saintly husband and beloved son. For her, these 19 years have not been successful, they have been almost unbearable.
It was painful reading this book--I had to put it down often. Amy portrays herself as woman who seems to resent even the idea of looking at the positive side of things. She has locked herself in a mental pattern of self-pity. For example, she lists all of these things she has had to cut out of her life because they are too closely associated with a traumatic medical event. This ranges from certain foods to a certain outfit. To this day, she will not put her hand on her husband's knee when he is driving because it reminds her of a horrible ride to the hospital. This is where I think choice comes into play. In this situation, she has chosen to embrace the trauma instead of embrace the new day. This I find to be extraordinarily tragic.
This is Amy's story and she has a right to tell it as it is. My only fear is for those awaiting transplant and for those who may have been, or will someday be, in the position to donate a loved one's organs and save lives. Please do not think that Amy's story is consistent with what it is for everyone post-transplant. I, for one, am happy to live a shorter life with medical ups and downs--it is worth the trade to be here with those I love.
There are many "sick girls" out there--Amy seems to feel as though she is the only one who knows suffering. There are those who suffer physically but choose not to suffer emotionally and spiritually. I hope someday Amy will embrace this concept and find some peace.
Tiffany Christensen, Author of "Sick Girl Speaks!"
21 of 23 people found the following review helpful.
sick girl, sick reader
By boardwalk NJ
This was a difficult book to read. In many ways. Having been a cancer patient and having had chronic pain, i know too well how difficult it is to try and "buck up" be the nice patient. I know too well how much disdain doctors, nurses, medical professionals DO have for patients who don't behave in ways they deem acceptable. I have seen the blatant disregard in their expressions when you behave in bad patient mode, so it is no surprise that Amy Silverstein chose to tell her side of what its like to be a "sick girl".
Unfortunately, that's all Amy does. This book is one long Middle finger to the medical community and to all her acquaintances and friends who didn't understand how difficult its been for her to live day to day. Its astounding that she has been able to spend the better part of her adult years with as little self understanding as she had at 24.
Amy is a smart girl yes, but not an emotionally smart one. She never feels the need to search out other ways of thinking, or philosophies, or metaphysics, or anything that would help her stop blaming everyone else. at the very least she needed therapy. Amy took responsibility to stay alive when she was first diagnosed, she made that pact with herself and that IS commendable, but the end result was that she expected the world to cheer and applaud her daily effort , and because they were human, and couldn't, and didn't, we were subject to her book length rant. Its amazing that she was able to escape therapy, that no one forced her to get some kind of emotional insight and help. Saving this woman's body but not addressing her mind was not to her benefit.
I can well imagine how little grace of life is left after consistent illness such as hers, i can, and i do have tremendous sympathy for that. I just don't understand how Anyone could spend 19 years facing that daily and NOT become someone i was interested in reading or knowing or hearing about ever again. Amy Silverstein accomplished that beautifully.
Perhaps the problem i have with this book is that i expected her to have a message. Maybe her point is, exactly that, that we have no right to expect anything from her,and that just surviving has been a feat in itself and the best that she could do.
I think i will choose to think of her with more grace and hope than she has alluded to in her book.
43 of 52 people found the following review helpful.
An unexamined life
By N. B. Kennedy
The deal-breaker for me in this book is the author's total inability to process the circumstances of her life. Her description of these circumstances, and her reaction to them (whiny and irritating, as many readers have noted) are amply recorded. But huge and puzzling gaps made me wonder if this woman has learned anything from her life experiences.
For instance, after receiving her grim diagnosis of irreversible heart disease, Amy and her parents embark on a taxi ride during which she is, understandably, wailing and ranting about her fate. Her father explodes in anger, saying he's had enough. He makes the taxi driver stop, whereupon he and her stepmother get out, abandoning her in her despair.
What an astounding betrayal! And yet we never hear how she felt about it. She seems to have a genuine affection for her father and stepmother. But how can that be? The only time she brings the moment up again is when her father weeps at her bedside as the doctors tell her that she needs a heart transplant. "I felt desperate to escape his anguish," she writes, "just the way he had been driven to escape mine when he fled from the taxi in Boston." Odd family dynamics, and yet totally unexamined.
After that omission, the author's lack of insight became glaring. She brushes off her sister's heart troubles so that she can return to her own drama. She portrays her husband as a virtual saint rather than a real person. If they ever had a searingly honest conversation about the hand life dealt them, it's not recorded here. She hints that maybe he's had a hard time of it, too, but we don't hear about his howling moments. Surely he's had them. His anger at her tantrums in doctors' offices seems hard-hearted when recorded at the start of the book, but entirely understandable by the end of it.
In one hospital scene, two nurses offer her sympathy and acknowledge the immensity of her struggle, something she repeatedly claims to want, and yet her reaction is this: "Their sympathy was all I needed to dry my tears and turn self-pity into resentment faster than I could blow my nose." Why? Why does she say she wants understanding, and yet react in anger when she receives it?
Toward the end of the book, she says "anyone close should have known that many years of built-up emotion was about to explode inside me" and she sighs that she wishes her husband could know her "in a way that might be impossible." How could anyone know her? She actively prevents people from knowing her, so any real connection she might have with another human being is improbable. Sadly, Amy is not only a sick girl, but a very lonely one too.
The one statement that rang true for me in this book is the author's observation that it is not easy to make the leap from being a healthy person to being a very sick one, and that the longer you live without making this transition, the better off you are. I will take that word to heart, and be thankful for every healthy day I have remaining on this earth.
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